14 September 2015, Uncategorized
World Hospice and Palliative Care Day takes place on the second Saturday of October every year. It aims to raise awareness and understanding of the needs of those with life limiting illnesses as well as their families and continues to create opportunities where like-minded individuals come together, to bring up issues pertaining to palliative care.
Hidden lives. Hidden patients is the theme for this year’s World Hospice and Palliative Care Day, taking place on October 10, 2015. This year’s theme focuses on patients living in unique conditions that often struggle with access to palliative care including children, LGBT individuals, HIV prisoners, soldiers and those living in rural settings.
Star PALS, a service of HCA Hospice Care was recently reported in the World Day Report. Launched in 2012, Star PALS believes that every child is precious and has impacted almost 160 families since then.
Dr Chong Poh Heng, Programme Director of Star PALS, shares about his concern regarding hidden children in Singapore with genetic conditions. The dedicated team continues to provide Medical Care, Psychological Support, Art & Music Therapy, Family Care, Respite Care and Bereavement Support throughout. The services provided extends beyond the care of patient to their families. As reported, children and young people with genetic disorders are living longer thus posing a challenge as they transition into adult palliative care services. Dr Chong says, “These families certainly deserve the comprehensive and compassionate support that palliative care can provide, to make every moment meaningful and worthwhile.”
As an extension of Star PALS services, are the Medi Minders. They are a group of trained volunteers, who spend four to eight hours with patients while caregivers have a break. Medical students like Janice Soo, renders her services and dedicates time to make a difference and provide respite care for Star PALS families.
No matter how brief a shooting star lights up the night sky, its brilliant trail leads a path of hope to all who observe it. Star PALS aims to improve the quality of life for children with life limiting conditions and their families. Click here to find out more about Star PALS and how you can help make a difference in the lives of these children. Join us on this journey as we brighten each and every shining star!